I wrote this a few days ago mid meltdown (see my post over on facebook to hear all about it!)
In December 2014, 12 months after being diagnosed with Stage 4 Melanoma, a terminal prognosis, I wrote about my struggle with living life in limbo. I had gone from meeting with palliative care in January 2014 and planning my death, to December when I was responding to treatment and feeling well. Yes, I still had terminal cancer, but I was faced with the potential of this new immunotherapy treatment extending my life by years.
My husband and I had spent months ‘living in the moment’. Serge stopped working to spend as much time as possible with me. We got married. We went on holidays together. We just enjoyed our time together as much as we possibly could.
Read MoreThis is probably the most boring post I have ever written with very little emotion or passion mainly because I am not letting myself go to that place. So, a short post to update you on my health.
I think I have been in the frame of mind that if I don’t write about it, I don’t have to deal with it.
I finished radiation to the lesion on my adrenal gland two weeks ago and I was super lucky in that it didn’t make me very sick (except for some very hilarious vomiting incidences – lets just say, thank goodness for the empty soft drink cup in our car!). I finally feel that I am getting back to my normal self, back to work, the gym and pilates. I still have a lot of back pain, but that will take some time and lots of massages!
Read MoreIt is hard to believe that tomorrow I have my PET scan. It has really snuck up on me this time. It was just over 3 months ago I was sent to have a PET scan because it looked like Debrafenib and Trametinib did not work, and it most definitely did not work. I was once again faced with the reality of terminal cancer and concerned that I was running out of options. It was not a good time physically and emotionally.
Here I am 3 months on in a totally different frame of mind.
Read MoreI started writing this blog post yesterday and it was titled ‘desperate and dateless’ and after a doctors appointment today I needed to change the title.
I know many of you have been waiting to find out the results of my PET scan that I had last Friday and I apologise for not updating you earlier. It has been a really hard week since finding out last Wednesday that treatment was not working and waiting for my PET scans to establish how bad the situation is. I needed time to process the information, but also have the time to communicate the news with my family and friends. To be honest, I also didn’t know how to tell you the news.
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