I wrote this a few days ago mid meltdown (see my post over on facebook to hear all about it!)
In December 2014, 12 months after being diagnosed with Stage 4 Melanoma, a terminal prognosis, I wrote about my struggle with living life in limbo. I had gone from meeting with palliative care in January 2014 and planning my death, to December when I was responding to treatment and feeling well. Yes, I still had terminal cancer, but I was faced with the potential of this new immunotherapy treatment extending my life by years.
My husband and I had spent months ‘living in the moment’. Serge stopped working to spend as much time as possible with me. We got married. We went on holidays together. We just enjoyed our time together as much as we possibly could.
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This time last week I was recovering from the month of planning that led to an amazing evening of fundraising at 'Through the Looking Glass'.
To be honest, I wasn’t just recovering from sleep deprivation and a few too many wines, but I was experiencing ‘post event woes’. They hit me hard after our wedding and then again after 'Through the Looking Glass' last year. I was expecting them big time, definitely considering I really didn’t have something to move my attention to (we hadn’t locked in our few days away or found out (thanks to all of you) that we would be planning our kitchen renovation). I depend on having something on the horizon to keep me going and avoid falling into deep depression that I cannot budge.
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With 2 weeks until Through the Looking Glass, I am so excited to share with you where the funds raised from the night will be going.
One of my favourite things about working with Melanoma Institute Australia is the freedom I am allowed to choose where I want the money to go.
Without further ado, researchers and doctors at Melanoma Institute Australia are developing a unique clinical trial that will use existing drugs to target rare genes in melanoma patients who have exhausted all other treatment options.
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I feel like a bit of a fraud.
For almost two years I have been documenting my life with terminal cancer on my blog Dear Melanoma.
I have prided myself in writing a blog that is heartbreakingly honest – you will definitely cry with me, but in-between I promise you will find yourself laughing.
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