I never thought that I would so casually say, ‘as long as its not cancer, I can manage’ or ‘it is better than the alternative – dying’. However, this has become my reality. It has become my mantra this week.
As those that follow the Dear Melanoma Facebook Page would know, I have had a bit of a rough trot emotionally. However, this last week I have had some scans and tests that fall outside my normal scheduled trial scans. Enter stress, fear, worry and absolute panic mode.
The last month I have been Ms Twitchy McTwitch. I randomly developed a twitch that is the epitome of annoying. Most (lets be honest, pretty much everyone) that I mentioned it to felt the need to share their story of how they often have twitches and it is due to stress or fatigue. I am very well aware that this may be the case as it is not the first twitch that I have had in my almost 24 years, but what sets my special twitch apart is the fact that I have CANCER – CANCER IN MY BRAIN. For me, it is not quite so easy to dismiss it as just fatigue or stress, but instead I fear that this may be an indicator that something is happening in that brain of mine or potentially could be a sign that the cancer has spread to my spinal chord.
Read MoreI have decided to share with you what would have been my first ever blog post on Dear Melanoma… but I chickened out! Here it is a year and one day on!
Tomorrow we celebrate Mother’s Day, a day that has always been low-key in my family home, but still a day that never goes without some kind of token to celebrate or treat my mum. I want to write about some of my own feelings that have been with me for some months now. Feelings that I have not openly shared.
I have always thought that I was born to be a mum. When I was at school, especially in high school, I was asked what I wanted to be when I grow up; I never really had an answer. Most of my peers would list endless careers, but I couldn’t. I just knew I wanted to be a mum. My career would simply have to fit around me being a mum.
Read MoreFor those of you that follow the Dear Melanoma Facebook Page, you would know that I do not like using the terms ‘fighter’ and ‘warrior’ when referring to my journey with melanoma and terminal cancer, nor will you ever hear me refer to another person using these terms. This is purely personal, as I know many gain strength from such terms.
A few days ago, I was discussing this with a friend and it prompted me to write a blog about why I do not find strength in these words, but instead frustration. I am not asking people to stop using these terms, but it is important for people following my blog to understand why I may hesitate to be part of awareness activities or conversations that use these labels.
However, most importantly, I want people to leave this blog understanding that everyone’s journey is different. Everyone responds to their diagnosis, or their loved ones diagnosis, in different ways. Everyone has a different way of coping.
Read MoreA few weeks ago a story was published by The New York Times called ‘Lost in Transition After Cancer’, the author Suleika Jaouad who at age 22 was diagnosed with Leukaemia. The story was published during Young Adult Cancer Awareness Week. Suleika wrote about her life since cancer, as well as highlighting the need for ongoing support for those, especially young adults, who are transitioning from life with cancer to life after cancer.
Take the time to read the story here.
Suleika and my story are different in many ways. Suleika had leukaemia, which meant different treatment to what I am on (treatment much more physically demanding and taxing on her body) and a different prognosis – Suleika’s treatment was always meant to get her to remission. Whereas, with Stage 4 Melanoma, remission has never been the destination at the end of my treatment journey – my doctor and I hope for time.
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