I haven’t been blogging of late – a combination of laziness and the craziness of life (I know, the contradictions!).
For those of you that follow the Dear Melanoma Facebook Page, you will know that I am in the process of starting a new clinical trial. I say process because I am currently jumping through a million hoops to secure my place. I have signed the consent form, but I still have to have a million and one tests/scans etc to tick all the boxes before I am officially eligible for trial.
As you can see, the clinical trial process is complicated.
I am not new to the world of clinical trials. In February 2014 I started a clinical trial for Keytruda (now on the PBS) and was on the trial for almost two years.
I didn’t really blog much about my feelings and experience of being on a trial, but I have decided that I am going to start a little blog series called, ‘The Musings of a Lab Rat’.
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Introducing my darling husband who most of you feel like you already know - Serge. Serge is guest blogger tonight! Woot! Woot! Get your tissues ready because I needed them. The reason why Serge is writing this is to help prepare him a little for his Smiling for Smiddy Challenge, riding from Brisbane to Townsville, and to also help you understand why he wants to raise money for cancer research. Details for donating will be at the bottom of this post.
This is my first time doing something like this. Sharing my story isn’t my strong point – that is Emma’s forte. I feature regularly on Emma’s blog and know that she writes about our relationship, often the saddest moments, but we both thought that it is time to share my perspective. It is not often that you hear the thoughts of the partner of a cancer patient - their role as carer, chief cheerleader, comedium, and ultimate cuddle buddy. Warning alert...a bloke may talk about his feelings.
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Wow, it has been a month since I published a blog! I understand why… this month has been chaotic! Possibly a little too chaotic!
It has only been in the last few weeks that I have felt on top of things again. The ups and downs of my health the last few months really took its toll both physically and emotionally and saw me need to disengage from many of the activities that keep me sane and feeling like ‘just Emma’, not Emma with cancer.
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This time last year, my life was on track.
I was almost at the end of a year volunteering in Timor. I was looking forward to starting my masters in Occupational Therapy, and I was coming home to an exciting new relationship.
Life was pretty much as good as it gets for a twenty-two year old.
But then came August, and with it my melanoma, and everything came tumbling down.
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