A few weeks ago, in the midst of total physical and emotional exhaustion, I found myself binging on Netflix. I have no idea how I managed to live life before Netflix? What did I do with my free time?
I got through the most recent season of Pretty Little Liars and was really struggling to find something else to watch. I stumbled across Chasing Life, an American show about a 24 year old with cancer. I normally avoid shows and movies about cancer, but I was desperate and thought I could justify it as research for the blog. I was expecting to pull it apart and criticise how ridiculous it was or I was setting myself up for lots of crying. I was so wrong on both accounts.
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This afternoon my husband and I had a good old fashioned cry – I was more a blubbering mess and Serge was more controlled with the number of tears let loose.
This afternoon we went to see 'Me Before You' at the cinema. Serge had no idea what he was in for, he simply heard the word ‘movies’ and decided that he must accompany me. However, I had planned to see 'Me Before You' since I heard that it was being made into a movie.
I had read the book by Jojo Moyes twice – before my cancer diagnosis and after. It is a bit of an epiphany writing that because it is quite right, my life is now defined by life before my terminal diagnosis and life since – life since living knowing that I am dying.
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Today the Dear Melanoma Facebook Page reached the big 10 000!!! It would be silly to not recognise and celebrate this milestone.
Over the last two years Dear Melanoma has become a very important part of my life. The blog has given me purpose and something to concentrate on when the world around me felt like it was falling to pieces.
I was diagnosed with advanced cancer after returning from working in East Timor for a year – I was only 22. I had no workplace surrounding me that could support me and allow me to continue work. If I did want to work, I would have to go in being honest about everything that came along with having cancer, terminal cancer. Dear Melanoma has become my job. Even though I do not receive a salary, it has given me the structure of a job. It has given me the pride and the aspirations that come with a career. As the blog has grown, so has the roles that have come with the blog – speaker, advocate, published writer, fundraiser. The blog most definitely keeps me busy and limits the time I spend in the ‘woe is me’ frame of mind.
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My birthday is less than a month away and I am already feeling the stress and emotions that have become as much part of my birthday as a delicious pavlova!
I have always loved birthdays and I have never been one to not celebrate, but the last few years, since being sick, birthdays have become increasingly difficult.
My 23rd birthday in 2014 we went big because it was my first birthday since my prognosis and the importance of celebrations, due to not knowing if it would be my last, was at the forefront of my mind as well as friends and family. I remember struggling on the day, but not as much as I did last year.
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